Moebius Syndrome Awareness Day is fast approaching on January 24th! Near and far, get your purple ready!!!
Tag and text us your purple pictures!
💜 Let’s see how much we can grow the knowledge this year!
💥Knowledge is POWER! 💥
What is Moebius Syndrome?
Moebius Syndrome is an extremely rare condition that affects the sixth and seventh cranial nerves. It affects 1 in 4 million. A person with Moebius has facial paralysis and is not able to move their eyes side to side. Most people born with Moebius can not close their eyes or form facial expressions due to the lack of facial nerves. They can not smile, suck, blow, wink, squint, or blink and typically have difficulty with eating and speaking. Unfortunately, Moebius condition is permanent.
Be kind & smile for Jackson because you can!!!💜
If you would like to order a shirt, text or message me.
Mila- "Moebius syndrome is real & I need to teach people about my brother! He's unique, he smiles with his heart!" 💜
#jtrstrong
#jacksonsjourney
#smilewithyourheart
#moebiussyndromee

Mila (sister), Jackson and Santa hanging out on a chilly winter evening. Jackson was so thrilled to hang out with Santa and he was asking him all kinds of questions.,

Never too early to light up your house with Purple. January 24th Jackson is encouraging everyone to wear their purple and use his hashtags to light up the world in Purple!
#jtrstrong
#jacksonsjourney
#smilewithyourheart
#moebiussyndromee
“Let's see your purple! Let's gooo!" - JTR
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